Personal Stories

Personal DNA Theory

The labeling says the reactions are not dose dependent. Any drug that interferes with DNA is dangerous. What if it also interferes with normal cells not only bacterial cells? Our science is not advanced enough to be sure it doesn't. What else could explain the multi systemic ADRs many people have? Collagen disruption is admitted to by the drug maker. Collagen is necessary for healthy tissue in your whole body. I hope doctors think twice, thrice, a hundred times, before ruining someone else's life with quinolones. Anyone who thinks doctor knows best has some growing up to do.

— "Quinned out", Whittier, CA

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Delayed Reaction from Levaquin

I took Levaquin in Feb. of 2008 and did not experience anything until April. It comes on quickly - pain in all joints, neuropathy, headaches plus a multitude of other problems. I understand it is a long and arduous road back. As for me - I would NEVER take any fluroquinolone again. The FDA has posted a "black box" warning on these medications. It has ruined my life.

— Ann

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Extremely Delayed Reaction

I took floxin 12 years ago for three weeks for a virus that attacked my liver. For the last two months I've had neurologic symptoms, some fatigue, numbness in head, neck, arm, knee, tight muscles, spasms.

— javelina101

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Personal Experience: Tinnitus

Yes, I've had tinnitus since September of last year. I was floxed in July 2003.

While being floxed and for several weeks afterwards, I had *extreme* discomfort from sound. Actual physical pain and a sensation of pressure in my ears. (Same thing with bright light.) Pretty much all sounds seemed louder to me than usual, and very loud sounds were excrutiatingly painful. A roomful of people talking was more than I could bear.

After about exactly two months of this pain from noise, the tinnitus started, suddenly, in the middle of the night. It woke me up out of a sound sleep.

— Justin G

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Failure to use as drug of last resort

"Doctors fail to realise that these drugs have a proven history of severe toxicity. They are not and cannot be considered first line agents, but drugs of absolute last resort."

— David Fuller

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I took Levaquin 2 months ago for a UTI. After the third dose, I went from a healthy 34 yr old to a 100 yr old woman. I had myalgia, extreme anxiety and panic, insomnia, tremors, neuropathy, tinnitus, blurred vision, and joint and tendon pain. Most of the symptoms have either diminished or gone away except for the joint and tendon pain, tinnitus, blurred vision, slight neuropathy, and some anxiety.

— Seena

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Every morning when I open my eyes, I awaken to this nightmare. There is a “sickness” that feels like my body has been poisoned. My hands and feet are swelled and sore…my entire body is stiff and painful…heart-palpitations, vibrations throughout my body…ringing in my ears…bleeding specks of sores on my skin…and a full, bloated feeling in my gut…I feel like I should be dead. It is only by the grace of God, and the love of my 2 children that I am able to pull myself up out of bed, and make it painfully down the stairs.

— Shelley

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Within a day of stopping I had shooting pains down my legs, and my joints started hurting and cracking loudly when moved. I had constant muscle spasms, tightness and pain in my arms and legs that left me unable to leave the house for a week. I also developed a constant ringing in my ears for the first time in my life, which has not decreased since. Along with a host of other smaller symptoms.

— Evan P

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Severe reaction in young and healthy athlete

On my 23rd birthday I started ciproI only took 3 doses of cipro in total before realizing what was happening… I went from being a very healthy 23 year old male who was athletic for over 10 years doing Karate, Yoga, Football, Judo and other sports, I eat an extremely healthy diet, no bad foods at all, and generally take care of myself in everyway possible, I have never drank alcohol and never smoked… I have all the blood tests and other tests to prove how healthy I was.

— Matthew

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Multi-System Worsening Long Term damage

Fluoroquinolone antibiotics have damaged many people. I know of this severe damage on a personal level since I suffered such and adverse reaction to the fluoroquinolone antibiotic Levaquin myself 22 months ago. Since then I have had daily pain and disability of my nervous and musculoskeletal systems and for several months had endocrine and gastrointestinal problems as well.

— Todd Plumb, MD

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